Still waiting

Caroline_
 

Caroline_

Wednesday 07 May, 2008

Posted in Roaccutane Diaries

It must have been about March time when i was sent to the dermatologist and a month later I had all my blood tests, etc done. The waiting list seems to be soo long though and my next appointment is next week, so hopefully I’ll be starting then!

However, they want to put me on the pill as well, due to the deformities it can cause to unborn babies but I don’t need to be on it and I don’t want to take medication that also has risks & that I don’t need to be on just yet.
Was wondering if anyone else has been given the Rocac without being forced on the pill or whether i’m just going to have to take the two?!
Thank you!

21 Responses to “Still waiting”

#1 kelly says...

i haven’t had to go on the pill but the reasons for me are because i am 30 have 2 kids already am not in a relationship and not looking to be any time soon and i have polycystic ovaries so may not be ableto get pregnant and finally i cannot take the pill as i am high righ risk of stroke if i do. i did have to promise my derm that i really am not going to try and get pregnant and because of my age and circumstances she trusted me enough to still put me on roac. 2 years ago a derm refused to put me roac because i refused the pill because of the high risk thing. however i still would recommend that anyone should take the pill aswell as accidents do happen.

May 7th, 2008 at 9:31 pm

#2 Sally Woffinden says...

My derm didnt ask me about going on the pill. He advised me not to get pregant, then i had to sign a disclaimer to say i wouldnt get pregant. At least it sounds like the derms your all using are doing their jobs properly!

May 8th, 2008 at 11:20 am

#3 becky says...

Hi Caroline,
i felt like that too, i know for a fact im not going to get pregnant and i didnt want to put yet another drug into my body as well as roaccutane. It obviously can’t do you any harm, just personal prefrence. Obviously depending on your own personal cicumstances will depend on if you should take it or not.xxxx

May 8th, 2008 at 12:09 pm

#4 caroline says...

thanks for the replys, yea, i guess the derm has just got to make it clear how important it is not to get pregnant but it defos wont happen!!! esp considering the risks. hopefully i’ll just be able to sign a disclaimer as well! xx

May 8th, 2008 at 3:20 pm

#5 Lor says...

My dermatoglogist told me that I wasn’t going to get Roaccutane unless I was on the pill, even although I know there is no chance of getting pregnant. It was explained to me that if you are of age to have children then you are at risk of becoming pregnant. The example they gave me was that I could be raped not nice to think about but I can see their point of view. They said many people are concerned with being labelled as a risk but it’s something they have to do.

May 8th, 2008 at 5:07 pm

#6 Nina says...

Hey Caroline,

I insisted that i didn’t want to go on the pill when i started Roaccutane because i don’t like how it affects me. I actually did start taking it again over the last few weeks but have made the decision to come off it again tomorrow as i simply am not comfortable in myself when i’m on it!

Obviously, i’m not for a moment trivialising the surrounding issues and fundamental decisions that come with getting pregnant. However, i’m inclined to argue that essentially if you never intend to keep a child at this time in your life then getting pregnant on Roaccutane or not is (for want of a better phrase) ‘neither here nor there’. The pill is only a necessity for people who, if they were to become pregnant, would be left with an impossible decision…

Again, let me stress (just incase i offend anyone), i’m not saying one shouldn’t be 150% careful not to get pregnant, i’m just saying that if someone is really uncomfortable with being on the pill surely it’s a case of being extremely careful (or celibate) whilst they are on Roaccutane.

I’m just speaking from the experience of someone who would rather eat her own feet than be on the pill, that’s all!

Nina :) x

May 8th, 2008 at 8:33 pm

#7 Leanne says...

My derm made me go on the pill, I do understand the risks if I did get pregnant, but I do think that going on the pill does not help whilest you are on the treatment.

The pill controls your hormones, so how do you know what is working for you, the pill or roacutane??? And once you stop taking the pill, will the spots return!!! I hate what it does to the body.

I took it for one month and have since stopped taking it. I am getting married in August so getting pregnant is certainly not an option (I want my dress to fit) on the other hand chance would be a fine thing at the moment too LOL!!!!

May 8th, 2008 at 11:00 pm

#8 Fufu says...

Hie Caroline

I asked my derm if I should be on the pill but he asked ‘do u want to get pregnant?’, I sed no so he sad there’s no need.

May 9th, 2008 at 8:54 am

#9 vixisabel says...

Hi,
I just went to the Dermatologist the other day so that I could get roaccutane, and even though I told her that I’m not going to have sex until I get married she said that I still had to go on the pill! Nice!
Anyways, the pill is supposed to help skin- that’s at least what I’ve been told!
Personally, I just want to get rid of my bad skin and will do anything!

May 9th, 2008 at 9:03 pm

#10 jonny says...

I was just looking for some peoples thoughts on post-treatment symptoms and came across this thread.

I can’t believe this. You are obviously so worried about your appearance that you went to a GP, referred to a specialist, saw a consultant, had a whole pile of bloods taken and yet you would decide not to take a pill that could stop you having a child that WILL have birth defects.

I have had really bad acne for years and I fundraise for two charities which deal with disability and am a little surprised that you can decide that you can’t be bothered to take an extra pill a day. Mail me back when people are staring at you and your baby and his/her disability

May 11th, 2008 at 2:56 pm

#11 caroline says...

in reply to jonny, i am really quite offended by your post. I do not need to take the pill as i am not sexually active not because i ‘can’t be bothered to take an extra pill a day’, therefore i do not see the need in taking the pill.
If there was the slightest chance i may get pregnant i would definitely take the pill, no one would want their child to have a disability and i fully understand the risks with roaccutane and deformities in children.
may be you should have asked questions before making such a comment.
to everyone else who has replied, thank you, your comments are of great support

May 11th, 2008 at 5:04 pm

#12 jonny says...

I come across patients like you fairly frequently. They’re not sexually active but they need Lavonelle. Bit strange that.

The fact that you take about “the pill” shows that you have a limited understanding of oral contraceptives as well as oral retinoids.

Some consultants say that you are able to have a rare drink during treatment (even though this is against Roche’s advice), so maybe you want to gamble with Foetal Alcohol Syndrome as well.

You’re life, you’re choice (maybe the baby’s life as well, but who cares about that?)

May 11th, 2008 at 5:32 pm

#13 Leanne says...

Jonny, At 26yrs old I feel I am old enough to know not to get pregnant. When your in a relationship of 6 years and about to get married you know not to make such a silly mistake whilest on Roaccuntane.

Your comments are offensive, we use this site for support and not to get people like you shouting your foul comments about!!!!!!!!!!

May 11th, 2008 at 5:35 pm

#14 Becky says...

jonny you clearly have a touch of the dramatics, dont attack people for asking for advice on here its not appreciated.

take your comments else where.

May 11th, 2008 at 5:55 pm

#15 kelly says...

my god i cannot believe what i am reading, johnny i really think you need to have a chill pill and read what people are actually saying and not jump to your own conclusions. the girl obviously knows her own mind not to get pregnant. i cannot take the pill as i had a mild stroke in my twenties because of it. i know full well that i am not going to risk getting pregnant even if it means being celibate. rather that than risk my own life, and i totally agree with leanne this site is here to support people not offend them with what appears to be YOUR lack of intelligence and not anyone elses.

to everyone else caroline, leanne and whomever else keep smiling and hope your roac journeys are going well, don’t let jonny’s comments get you down grrrr!!!

xx

May 11th, 2008 at 6:00 pm

#16 Jonny says...

I think you should Google birth defect photos and come back and tell me that they’re only “silly mistakes”.

I’m glad that you’re 26 and getting married - good for you. I’m male and my girlfriend went on the POP and we used condoms when I was on it.

Support should be constructive and helpful, not detrimental. You need to look carefully at the risks on the the leaflet. The latest version has the probabilities of side effects and contraindications on it.

May 11th, 2008 at 6:01 pm

#17 kelly says...

johnny i really think you are taking this to the extreme and most people will disagree with you on here. this site proves that we are all fully aware of the side effects and risk and not one person i have met here yet has gone into this with their eyes shut. All you are doing with this personal attack is upsetting people and with the risk of depression on roac people like you will not be welcomed. obviously you have a personal view and i too have worked with children with birth defects none of which were caused by roac. anyone on roac knows not to risk it and i am sure that they wouldn’t as i said even if that means being celibate. those who can’t do that are on the pill.

please don’t risk upsetting people on here, you’ve said your bit and i’msure its been noted but tread carefull this is a rough enough journey as it is, i’m 30 and can take a bit of offence but there are others that wouldn’t and would get as i said really depressed by your words.

May 11th, 2008 at 6:13 pm

#18 Will says...

Jonny, you are right support should be constructive and helpful if it is in good faith… but please take Kelly’s advice and read the whole post carefully because you are jumping to conclusions.

I don’t know your personal situation but this topic seems to have hit an emotional chord with you. Please just watch your tone as your comments appear very aggressive and this is not what this site is about.

May 11th, 2008 at 6:22 pm

#19 James B says...

Jonny you are entitled to your opinion but don’t express it with comments like this:

“Mail me back when people are staring at you and your baby and his/her disability”

That is a purely destructive criticism. Shocking, insulting and bang out of order.

May 11th, 2008 at 8:21 pm

#20 Dan says...

How ironic that someone called Jonny is banging on about contraceptives.

May 11th, 2008 at 11:43 pm

#21 Nina says...

I’ve just read these comments and am horrified that a man of such self-assured judgments and conclusions can offer such a bigoted, tactless and socially inept point of view.

We all know the risks, we’re made very aware of them when we embark on a course of Roaccutane - so your clumsy and aggressive climb to that high horse is limited in longevity. If you could argue your point more articulately then i might be inclined to pay further attention to your posts, however, the ‘all guns blazing’ approach i never respect.

You seem to have found little time to consider or even read what anyone has said here, a fundamental error you simply can’t afford if you’re going to attack a website of people. For someone of such knowledge and experience, do tell me how one can get pregnant without having sex?

An utterly disgusting and thoughtless collection of posts, Jonny.

May 12th, 2008 at 6:46 am

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