Chishimba’s Roaccutane Diary - Week 4

Chishimba
 

Chishimba

Wednesday 02 April, 2008

Posted in Roaccutane Diaries

I’ve come to the end of my first week on roaccutane and it hasn’t been pretty. I started feeling some of the side effects about three days in: dry lips, breakouts and worst of all my skin has taken on a dark greyish hue.The breakouts weren’t too bad to begin with, but week four has been the worst - I have a pizza face. I tried to squeeze the angry red one on my chin but now I just have an angry red and crusted zit right near my mouth.

When I say that my face looks grayish I mean that it looks like I’ve put baby powder on my face. I’ve gone two or three shades darker but only on my face.

I don’t know the explanation for this but I read on the internet that it is a rare side effect of the drug - has anyone else experienced this??? As well as being very dry, my lips have gone red which contrasts sharply with my darker colour - I look ill.

This is not good in a country where such an appearance is associated with people taking ARVs. I’ve read on one of the blog sites that things get better after the sixth week.

I read on another site that the breakout continue through out. I’m pinning my hopes on week six. Can’t ask my derm anything because as far as he’s concerned roaccutane doesn’t have any side effects other than dry skin and lips - somebody please help!

7 Responses to “Chishimba’s Roaccutane Diary - Week 4”

#1 Lucy Lutman says...

Hi Chrishimba, Hang on in there! - I’m coming to the end of week six and its really clearing up. Just have a few little red patches where the break out I had last week is clearing up! I expect there may be another break out at some point but its definately getting less and less as the weeks go by.
Good luck!

April 3rd, 2008 at 7:29 pm

#2 Nina says...

Hi Lucy, did you have a breakout last week then? Because i am on week 5 and my skin is worse than ever (after clearing up wonderfully in the first 4 weeks) - did you have an upped dosage? I’m feeling a bit disheartened about mine… :/

Nina :)

April 3rd, 2008 at 11:37 pm

#3 zenina says...

Hi Chishimba

Boy am I glad to find you. Another person of colour suffering from the grey face/red lip look! Now while I am not happy we both look like freaks, i am happy someone else can understand the peculiarities of black skin and how it reacts to roaccutane.

What is your daily dosage? I started on 40 mg a day and after day 10 nearly had to be hospitalised. My lips borke out in blisters which actually bled, my nose had no moisture and was very painful, my eyes were scratchy and their severe dryness made me blink constantly so I looked like a mad woman - grey face, bright pink reddish lips and blinking like a fool. It was a story i tell you.

I stopped taking the med and consulted my derm she said as far as she was concerned i shd b happy cos the side effects confirm the stuff is working!! she also accused me of punking out and basically being a wimp. (!!) She also said same thing as yr derm - that dry skin and lips is the worst roac will do. She refused to lessen my dosage but i quietly stopped taking my pills and only went back on them when the sores and blisters on my lips healed. The blisters were so bad I had to cover the lower half of my face when i went out, like a Moslem woman.

Anyway after they healed I started talking half the dosage, but only every other day! Then i slowly built back up and now, six weeks after that awful reaction, am back to 40mg per day. this is day 3 of 40mg per day and I am a bit scared am just watching my face very carefully as I don’t want it to get painful blusters again.

Let me add a few things - I am 34 and first had acne at age 11. Do your maths and understand my suffering…

Plus it has never been mild acne. I have only ever had severe acne. Having such a wack face made me determined to keep the body nice so I have always kept my weight good and gone to the gym to get nice and toned. Its a crazy combination though - good figure and wack face. Guys don’t know whether to step away from me or step up to me!

Last point - this is my SEVENTH time on roaccutane!!! My med aid will not cover it and every single time i have run out of money around the 3 month mark. I hope to be able to do six months this time and hopefully never take it again :)

pls keep me posted so we can check each other’s progress!!!

take care God bless

April 20th, 2008 at 3:26 pm

#4 chishimba says...

Dear Zenina,

I’m so happy that someone out there knows what i’m going through! If you read my background you’ll find out a bit more about me. I’ve put up a post for weeks 6&7, things have improved though i’ve still spotty. Don’t give up and always take the dose prescribed. I also have to pay for my own medication as i don’t have medical aid and there’s no NHS here. Let me know how you get on :)

April 24th, 2008 at 5:52 am

#5 Fufu says...

Hie Zenina

I am 25 years old and i have had acne for the past 11years since I was 14, that’s when i can say it got serious. i am on the 3rd week now and i have had breakouts. this is not the first time i’ve taken Roaccutane, i once took it and stopped in the 3rd week coz of financial difficulties. i was thrilled to find this website now i know there r many of us out there, at least we can comfort each other.

i am an African from the Southern parts of the continent where very few people sympathise with acne sufferers, u get stigmatised, just the stares u get when u walk in town r enuf to send u home in a hurry, and the thousand questions and home-made remedies?!9they claim to have worked, believe me some even suggested drinking one’s own urine, ALL FOR THE LOVE OF BEAUTY). I had some fellow students at University (who were not even my friends) who said they were praying for me, How touching it was but the Real world was a bit cruel. I ended up being anti-social anf the worst part was that my Mum and Sister have very smooth skins and I am the first to get acne (severe for that matter) in the whole clan. I hate family gatherings.

My medical aid doesn’t cover the drug but i was fortunate this time around, i had a well-wisher who bought me all 4 (20mg) boxes and I am on 40mg a day.

About the side effects, i have red lips and very dry sore skin especially after washing it. i still get breakouts and my chest sometimes gets tight and sore but i say endurance shall pay.

May 8th, 2008 at 2:21 pm

#6 Zenina says...

Hi Fufu

Yes well your story sounds similar to mine. Though I think I still take the prize for worst acne and longest suffering! This is my 23rd year of very severe acne. I sometimes wonder if the publishers of Guinness World Records need to know about me.

Gosh thats a bit rough, people saying they will pray for you! But thats how it is in southern africa as u say. Some ppl believe you are cursed.
At school I didn’t like to talk to anyone because everybody would just stare at my skin and back off. Now as an adult ppl still stare at me. You know what, you never get used to it. You never get used to the stares. You feel depressed and self-conscious every time you realise someone is looking at your skin.

I’m sad to say I’ve had to stop roaccutane as I ran out of money. My med aid does not cover it as it regards it as ‘cosmetic’, and in the same category as breast implants.
I managed two months b4 the money finished. But i do look a lot better, i just hope it won’t flare up again. I just can’t afford this medication any more. I am slightly happy i had to stop becuase I suffer very badly from the side effects. The skin on my lips would peel off until they bled and my eyes were always bloodshot from being so dry. My skin was improving but I looked like an alien. Then ofcourse there is that grey look which is so utterly wierd!

To those who are still on it I wish you all the best! I am sure yr skins will clear and you will hold yr head high again. I do understand how difficult it is to feel so terribly self-conscious but lets all remember how important a beautiful personality is. And that someone who will judge u by yr skin is not someone you want as a friend.

keep the faith and clear the skin!!

Z

May 13th, 2008 at 11:57 am

#7 Mi MI says...

Hi im new to this site but was happy to hear all the symtoms you guys have been discribing. I to am black and have gone several shades darkers with a greyish tint. Ive had friends who didnt recognise me and my younger brothers think I do not look like me. My lips are pink and i had a patch that turned black im not sure if this is because i peeled off the dry skin. At one point my top lip went black in parts. The corner of my mouth cracked and my body aches constantly. It also makes you just feel tired all the time. One thing I will say about the dry lip thing is vaseline does not work I was using vaseline for several months and my lips were constantly sore and peeling I would suggest going for something medicated Carmex has helped so did chapstck medicated. The skin thing im now just using E45 face cream and plently of coco butter for the body. Ive been on 60mg since just before christmas but have gone weeks without taking it and sometimes just forget. Ive decide to be serious now and just finish the course I think i have a month or so now left.

My skin is soo much smother if it wernt for the skin discoloration i would look real good and many have commented one of my friends asked me the other day if i was wearing foundation and i dont even own a make up bag she didnt belive me when i said no. So if your on it take it when you should on time and it does work i think if you take the course properly it shouldnt come back.

June 15th, 2008 at 3:49 pm

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