Abi’s Roaccutane diary - Background

Abi

Tuesday 26 June, 2007 | Posted in Abi's Roaccutane Diary

Hey everyone!

I’m Abi, I’m 20 years old and I have suffered with acne since I was twelve. At its worst it has covered my face, my back and my chest. In this background section I am going to mention a few of the products/tablets I have tried over the years and how effective they have been for me. I have currently just started a second course of Roaccutane and will be keeping a weekly diary of my progress. I hope this helps anybody considering Roaccutane.

My skin started to break out before I even started high school. I remember how self conscious I felt moving to a new school with a face full of spots. Nobody else my age had bad skin and I didn’t understand why it was happening to me. When I spoke to people I didn’t tend to look them in the eye and I’d cover my face with my hair. People used to make comments and after one particularly bad day where the girls in my form had targeted me, I asked my mum if we could go to the doctors. All the face washes I had been trying like Clearasil, Oxy and Clean and Clear had been no help so I decided it was time to try some tablets.

I was first prescribed Erythromycin, an antibiotic. I took this for about two years and it did nothing. I was also given some topical lotions such as Dalacin-t. This came in a funny roller ball and felt very sticky on my face. It also didn’t seem to help either. I went back to the doctors and they put me on another antibiotic called Tetracycline. After taking this for several months I also saw no improvement. I think at this time I began madly trying more over the counter products such as Salicylic Acid based ones and Benzoyl Peroxide. I remember the Benzoyl Peroxide (quinoderm) stung so badly when I put it on my face. From what I can recall, no over the counter product has ever been particularly effective at helping my acne. The doctor also gave me another cream called Differin - again this didnt help.

By the end of high school I was at the end of my tether. Another girl I knew who’s skin had got quite bad had taken a drug called Roacctuane (Accutane) and her skin was looking much better so I was keen to find out more. I asked my doctor and she said that the drug was very strong and was only prescribed by a dermatologist. We paid for our first appointment at a private hospital and I was told I would be allowed the drug. The dermatologist said he was going to start me on a low dose due to all the side effects (depression, muscle aches, nosebleeds, dry skin/lips). I started on 5mg a day. I got incredibly frustrated during the first month of my treatment as nothing much was happening as the dose was so low. I was eventually raised to 10mg and then 20mg and then I ended my course on 40mg. Through out the course the only products I had used were Simple face wash and Simple moisturiser. These were great because they were fragrance and colour free so they didn’t aggravate my increasingly sensitive skin. By the end of the course my skin was so much better. For the first time in years I didn’t feel hideously ugly and it was such a relief to be able to talk to people without hiding behind my hair. During the treatment my only side effects were dry skin (especially on the backs of my hands and tops of my arms) and very dry lips. My hair also went from being greasy to being very dry, I was used to having to wash it every day and it was quite a relief to not have to!

At this time I started university. It was great to be able to go away and feel confident about meeting new people. However after about 9 months of good skin, everything went down hill. I started to break out around my mouth. It wasn’t too bad to start with but as the months went on I started to really break out across my cheeks as well and my forehead. The spots on my chest also started to return. The only part of my body that stayed clear was my back. I had a really nice boyfriend and I felt so worried that he would go off me as my skin was starting to get bad. I started to avoid seeing him and when I did I found it very hard to look at him and felt uncomfortable when he looked at me.

I started to research on the internet and came across the N-lite laser treatment. I watched an interview with a girl who had had this treatment and I was desperate to try it myself as her skin looked so good. My fantastic parents knew how much my skin upset me and agreed I could have a consultation at the Private Clinic in Manchester. At the clinic I was told that the laser would kill the bacteria under my skin and also encourage the growth of collagen so my skin could heal. My parents agreed that I could have 3 laser sessions for £750. I also bought some of the Glycolic Acid products they recommended. These products irritated my face enormously so I didn’t use them. At the laser sessions I was given little metal goggles to wear to protect my eyes. The laser was then run all over my face, concentrating on the worst areas. The laser felt like a stinging sensation. After the sessions my face was bright red and blotchy and on one occasion I got little red bruises. They told me my skin would get worse before it got better. After my 3 treatments my face didn’t look better at all. I felt so bad because my parents had paid a lot of money and it hadn’t helped. I thought it might improve over time but even after a month after the treatments no improvement was evident.

At this point I went back to the doctors and they put me on the contraceptive pill Dianette. I had tried this tablet before and it had made me so emotional that I couldn’t take it. It had exactly the same effect on me this time. I was crying every day but I stuck it out in the hope it would help. I think my boyfriend thought I had gone crazy, I’d just be sitting with him and I’d just start crying for no reason. After 4 months I had not seen much improvement in my skin. I also tried microdermabrasion. I bought it off ebay, it was called Epidermx II. They had several promising looking before and after pictures but when I got the cream it smelt nice but that was about the only good thing about it. After a month of massaging this stuff into my face every night i realised it wasn’t doing anything, which sucked as it had cost £20. One thing I have tried that did seem to help a bit was tea-tree oil. I didn’t expect an oil to be able to help but it did calm break outs down. It also didnt aggravate my sensitive skin.

However, I was not happy and I decided I wanted Roacctuane back. I was worried I wouldn’t be allowed it as when I had asked about a second course previously the doctor had said “the dermatologist wouldn’t touch you with a barge pole, your skin isn’t bad enough yet”. But I didn’t want to wait around for my skin to get worse! I decided to go and see one of the nurses who had been seeing me since I was twelve. She said she thought it would be possible for me to take it again but I would obviously need to go and see the dermatologist.

I got an appointment and went to see him. He was encouraging me to try another strong antibiotic before I went back on Roacctuane but he could see I wasn’t keen. Antibiotics hadn’t helped me in the past and I couldn’t see why they would help me now. He agreed I could take Roacctuane again and start on 40mg a day this time as I hadn’t experienced any serious side effects last time. On the NHS I was going to have to wait 9 weeks for my prescription and my parents being fantastic again agreed I could get it privately, even thought it was going to be quite costly. I took my first 40mg on Monday 18th June 2007.

I will keep you informed as to how I’m getting on!

147 Responses to “Abi’s Roaccutane diary - Background”

#1 zara says...

Hi abi i have also just started my second course of roaccutane i started to get like big blood blister type boils over my face and behind my ears so my doctor refurred me back to dermatologist he agreed to start me on another coarse i started on 20th june and this time i am starting on 80mg a day my head is starting to itch real bad now and my lips are dry and i get that horrible gammy stuff in the corner of my mouth , my skin has got worse this first week and it looks like i have been on hoilday my face is a bit red the last time i was on it it was about 10 yrs ago i cant belive i am on it again at my age 38 but as long as it gets rid of it again what the hell i can cope with the itchy head and dry lips,i think i will have to get my nails acrliced again then i wont beable to itch my head so bad and make it sore(things we have to do lol). i used to work as a delivery driver to garages some day my skin was that bad i would just leave the paint and go before someone would see me i was so ashamed i hated my self some people just do not understand how acne affects you , just before christmas 2006 i had a really big cyst on my face i was really embarrest so i put a plaster over it and said i burnt myself with the straightners,i bet you use that one lol well i am off now if you wont to keep in touch feel free to email me back take care and hope your skin gets better soon zara x

June 27th, 2007 at 11:51 pm

#2 Abi says...

Hey Zara, I have sent u an e-mail :-) xxx

June 28th, 2007 at 11:09 am

#3 Jim says...

Hi Abi, Good luck with the second course. I feeel your pain and frustration. I completed my second course a few months ago. I usually notice that my acne returns about 3 months after finishing a course. I just have to be persistant! I think i will be having another course in a few months as i can feel them coming back. I hate it but im so pleased to have a had at least a few months without acne. Its amazing what it does for your confidence isn’t it?
Your story just touched me so i thought i would just say hi and tell you to keep going. If the side affects are not bad just keep taking the Roaccutane, its the only thing that has worked for me. I have done a 4 month and 5 month course on about 75mg a day. But its worth it.

Good luck Honey!!

July 18th, 2007 at 10:35 pm

#4 Emma says...

Hi Abi
I totally understand where you are coming from! I have had acne on and off for 11 years and it has been so bad for the past year that i have stopped going out unless i have to. I sometimes cant face work if my skin is particulaly bad and often cant sleep cause i worry so much about it.
It is the worst thing to go through cause it holds you back so much, i have just made an appointment to see a dermatologist and am going to ask for roaccutane as both my brothers took it and now have clear skin.
Will keep you posted and good luck!!!
Emma xxx

July 25th, 2007 at 4:26 pm

#5 Bali says...

hi Abi, reading your email brought tears to my eyes, and made me realise that my own daughter is not alone, she is also 20 and starting her second course of roaccutane this week. I am so shocked at the similaries between the treatements you have had and how effective or not these have been. Kiran my daughter was on roaccutane for nearly 7 months, after her skin was 95% clear for over 6 months, the the spots started re-appairing. Im just hoping the second course of this treatment helps cure it for good. Its extremely hard and emotionally draining coping with acne, and that’s for the patient as well as their parents! I can sympathise with your parents trying to do and help as much as they can, ive been there through the mill and the tears…i also hope your second course of treatment works….thanks for posting your story…keep in touch…

August 1st, 2007 at 2:41 pm

#6 Abi says...

Hey Bali,

I have sent you an e-mail xxxx

August 2nd, 2007 at 11:08 am

#7 sarah says...

hey abi, im sarah and im 16 ive have acne since i was 8 and its been soo bad, im now starting on my third course of roaccutane at 40 mg, the highest ive been on is 25mg do u thnk the sideeffects will be worse? I’m a lil nervous about going on it again because my lips and skin got so dry last time but i think that this is my last chance of getting rid of it, the dermatologist said yesterday that she was going to try roaccutane one last time at a really high dose and maybe go higher.
I would be so glad if you could email me back or post a comment, thanks a lot your story has been so helpful!

August 4th, 2007 at 5:29 pm

#8 Lizzie says...

Hey. abi I have looked at your story and its very much like mine! I was on roaccutane for a year 20mg 4years ago i really did not like it! it made my skin really dry and my mood had its ups and downs and my bloods went a bit mad! I had tried everything to stop my spots before i went on roaccutane and hope that this was going to be the answer. My spots did get better however in the last year they have become really bad again i went back to the Drs and they started me back on topical treatments and that did not work i have been back on antibiotic for 10weeks now and there is little change. I went back to the Dr last week and they said that i should go back on roaccutane so had refered back to my drem. I am a bit worried about going back on it as i had such a hard time the last time and just hope that it works this time as i really hate the way my skin is! I hope that it is not going to take to long to get the roaccutane my GP did not really give a me a time frame!

August 8th, 2007 at 8:24 pm

#9 sean says...

hi Im sean and im 14 and I have had acne since i was 10 it has really affected my self confidence and i have put on weight not to mention the underlying psychological pain of the torment i get off the dullards at school. I have tried numerous antibiotics from my doctor and none of them have worked. I have been on roaccutane for three days now and my bones are sore in the morning and at night. infact i was woken with the pain half an hour ago and cant get back to sleep. I hope I can just rid myself of this curse sooner rather than later. Thank you your stories have been insperational.

August 9th, 2007 at 12:46 am

#10 K says...

Hey Abi and other readers,

I am 25 and have had acne for years. I thought before I was 22 that it was my fault as a large population in the world seems to wash their faces and stay away from the trouble I had. Beauty therapists, friends and elders (not my own) were quick to advise of product and the more I tried the worse it would get. I came to the conclusion I was better not washing my makeup off as it seemed to annoy my spots.

At 22 I plucked up the courage to tell the doctor something needed to be done (after they got really bad and a customer in a shop said in front of all my co-workers that my spots were horrible and I should try antibiotics off the doctor like her daughter did - boy did I cry about that). The antibiotics did shift it but after working silly shifts and not being able to take my tablets regularly for some time they stopped working and left me just feeling sick whilst doing so very little. This time the doctor reffered me to the dermatologiest.

He has recently put me on my first course of Roacc. I have spent so much on products now trying to reduce the effects I can read I have coming. Abi you are really helping me and I thank you for that. It is good to feel that we are not alone as so many people are so quick to judge us thinking they know better and that just makes me not want to leave the house.

Questions:

Emma please let me know the dose your brothers were on and if it worked first time?

Zara do you know if that is a common problem?

Everyone: Is it worth it? Do they ever stay away for years? Will I still have creaky bones after? Has your hair come out and it is bareable? Did it stay out?

I know I need to do this so I can leave the house, give presentations, feel more confident, join in sports again, etc. I have accepted all that can happen I am deeply upset with spots but I need to know what has happened after the course for you and others. Sounds like there is a big probablility that they will be back within the year.

: (

For others reading this please do not make our mistakes and buy counter products, they are really not worth it and cost a fortune. Always see the doctor and go back if the first treatment does not work.

_________Thank you all (from my heart) for sharing______________

K
xxx

August 9th, 2007 at 4:29 pm

#11 Caramel says...

Hi,

Im a little bit scared. Im supposed to start roaccutane in a weeks time but the side effect are so scary.

August 12th, 2007 at 6:18 pm

#12 zara says...

Hi K
well firstly yes i think it is worth taking roacc ,you will get very dry skin but make sure you put lots of cream on to try and keep it from drying out,i have not had creaky bones and my hair has not fallen out so i cant comment on that,i had bad skin and after the first coarse of roacc ( 10 yrs ago ) i am on it again but this time i was getting a thew bad spots no were near what it was like before , but you will feel so much better about your self when the tablets kick in give it a month and you will deffo see a big change ,hope this helps take care and keep your chin up
luv zara xxx

August 14th, 2007 at 9:48 am

#13 Abi says...

Hey Caramel, iv added you to my msn if you want to talk about the side effects you are concerned about :-)

August 14th, 2007 at 1:56 pm

#14 Beck says...

Hi Abi,
Really interesting to read your diary. I’m just entering my 3rd week of roaccutane (aged 22, 30mg) and fortunately have experienced no side effects apart from very dry lips which seem slightly swollen. Was just wondering if you had experienced lip swelling at all? Good luck with everything!

August 15th, 2007 at 9:47 am

#15 Abi says...

Hey Beck!

I guess my lips did appear a little swollen to start with as I think they were agitated by the dryness lol. I wouldn’t worry about it unless the swelling becomes more severe. How is your skin looking??

xxx

August 19th, 2007 at 10:30 am

#16 Beck says...

Hi again Abi,

Thanks for your reply! My skin isn’t showing too much improvement yet but it has only been 3 weeks to the day that I started treatment. I can’t wait to see benefits tbh as I am so sick of having acne, especially on my back!! People don’t realise how much it can affect you, especially when it gets to the point that you can’t even wear the clothes you want to because your skin looks so bad!! People don’t expect you to get spots on your back. I went to the dermatologists today and she has doubled my dose to 60mg as I seem to be tolerating it so well. I suspect that I will start getting the dry skin on 60mg! I’m not too worried about the lip swelling now as it seems to have gone away and the dematologist didn’t seem concerned.

Glad to read you are still doing well anyway!!

Beck x

August 21st, 2007 at 6:07 pm

#17 mary says...

hey im 18 i started having achne from 14 which prevented me from wearing strap tops as my back would shoe so any time i was at a disco or a sunny day i would wear a jacket when it was really warm at times and people used to say why dont you take your jacket off. Anyways i was on roactane on 2004 after trying antibiotics and wasting money on loads of expensive creams which didnt work and then it came back after about 8 months which really upset me as i thought i had finally got rid of the spots on my chest face and back . I didnt like the thought of going on roactance again as its a really horrible tablet to be on because your skin and lips get so dry and itchy which makes you so irritable and paranoid and you cant lie in the sun and hardly any makeup will sit right on me si i tried not to socialise for the last two months of it or go out much. so i went on it again 2006 and it has cleared since but this past three months ive noticed mild achne coming back so i hopeing its just one of these things and itll clear up and not get any worse because suffering with bad skin effects my confidence and roactance is not an easy tablet to be on xxx

September 4th, 2007 at 6:18 pm

#18 Vas says...

Hi all!

I am currently on my 3rd months course. I was started on 60mg/day and this months course (3rd month) has been reduced by a 1/3 to 40mg/day as I was experiencing dry eyes/conjunctivitis and quite severe dry lips. Skin has been dry but nothing to complain of.

I’m 23, male and had pretty much the same story as Abi described in detail above. My skin is clear with just the odd small spot every now and again however there is redness with is a little embarrasing. tea tree oil at night helps and just a word of advice- if any of you have severe dry lips, use a urea based cream 10% such as Eucerin and use a sun screen for lips.

September 4th, 2007 at 9:13 pm

#19 simon says...

Hi Vas, just wandering, im 19 yr old male, been on accutane about 10 days now, i have recently been reading peoples experiences with accutane and the hair loss. Have you noticed hair loss when taking accutane, and has it been permanent? as much as i would like to get rid of my acne i am not sure if i would like to risk losing my hair, its really starting to get to me.

If anybody else could advice me that would be much appreciated.

Thank You :)

September 10th, 2007 at 8:22 am

#20 Vas says...

Hey Simon

If you have been on accutane/Roaccutane for just 10 days then the side affects shouldnt really manifest them selves THAT soon. As I said above Im currently on my 3rd month and have noticed minimal hair loss, but I have thick hair so im not too worried. Most people dont suffer with hairloss but those that do usually find the coverage returns when u finish your course. It did with my friend, he was on a much stronger dose to me. So I wouldnt worry too much, especialy at this early stage in your treatment.

September 10th, 2007 at 12:40 pm

#21 Angie says...

Hi Abi. I’m so pleased I’ve found this website. I;ve suffered with acne since my teenage years but when I was 21 it got really bad. I tried everthing - Dianette, Dalacin T even herbal remedies but nothing worked. Eventually I was put on Roaccutane (this was 6 years ago) and it cleared my skin up.But after a couple of years I started to get the occassional break outs, nothing too bad but still annoying but the breakouts have been getting worse recently and I feel that my acne is slowly coming back. I went to the doctors the other day and she prescribed Duac once daily gel. Has anyone tried this and if they have is it any good? I thought it was just my bad luck that Roaccutane didn’t clear my skin for good so it is comforting to hear that other people are in the same boat. I’m terrified that my acne is getting worse and I’ll have to take Roaccutane again but hopefully it won’t come to that. Anyway I’d appreciate any commments anyone has about Duac gel.

September 16th, 2007 at 12:02 pm

#22 Suzie says...

Hi am Suzie from kenya and have just completed my roaccutane treatment which lasted 6 months. The results are unbelievable. Not only do I have a clear skin with my acne and acne scars gone, but I experience no breakouts. I had serious uneven skin tone caused mainly by the scars and products that I had used before but now, its amazing. I experienced the usual side effects especiall the dry mouth and lips but my derma had precounseled me and advised i get a good lip gloss and he even prescribed a cream to help soften the lips should the situation get worse. I noted increased triglycerides and sometimes joint pains. Its been three months since I finished the dose and will get check next month just to compare my initial tests result and the current ones. Am now undergoing maintenance which involves peels, micros and a cream called prevage and renova which the derma is monitoring to see how I will fair on. It has been frustrating ofcourse when you read all the sad stories and one time I just shut my self off from what people said and concentrated on my treatment. My self esteem is throughly boosted, am happy and beautiful and hope for the best! good luck

September 17th, 2007 at 3:13 pm

#23 neel says...

hi ABI….

I am neel. I am suffering for acne..and I tried so many brand product which cost highly but didn’t get any good result. Now I am fadeup and visited a doctor, he suggested me to take Roaccutane capsule 20mg. But i am bit confused to take this capsule, because of Side effect. I read the side effects of roaccutane. Today I find this blog and read your comments on Roaccutane. I need to discuss with you..:) Is it possible to talk with you.. can you please add me in your msn list… I ll be very thankfull to you then….
bye for now…take care…
thanks…
neel….

September 19th, 2007 at 7:05 pm

#24 Lorraine says...

I really hope it does the trick, I also understand what you are going through. After many years of so many different treatments I was finally prescribed roaccutane. I’ve been on it 11 days and I’ve decided to come off now. My head felt like it was on fire last night, my lips are dry as hell and I am supposed to be doubling the dose at the end of the first month. Last night I didn’t take my usual pill and I didn’t sleep a wink and still haven’t. I’m pretty sure it is the drug that is responsible. Also by 3am I was in a massive depression, crying uncontrollably even though I felt fine emotionally. This drug really isn’t for me, I feel as if by taking it I am taking my life into my own hands (it’s that bad). I wouldn’t go back on it if someone paid me even though I hate my acne I feel as if I’d top myself if I went on it again. It should not be on the market it’s far too dangerous. But it is a bit of a predicament I can understand because it does work for some. It’s so unfair that we must go through this turmoil. It’s sad because this was my only hope but I’d rather go on with this acne than feel the way that drug made me feel. I truly do hope it works for you though babe. Goodkuck

September 23rd, 2007 at 10:04 pm

#25 natalie says...

hi my names natalie been to the dermatolagist today and i am being prescribed rocutane but have to go for tests first but i have to be carefull with it and my parents are going to watch me as i am suicidal with it i had mild acne now its severe but they gave me 300 mg of trimethoprim to take 3 a day antibiotics and retin a cream i just hope it works anyone wana email me as id like to talk to people witth same as me as no one else i know has it nat15s@msn.com

September 25th, 2007 at 10:59 am

#26 claire mckendry says...

hiyah abi, how r u, hope yah acne is gettin better, em well am on dianette jus now, and av 2 go on it 4 3 months thn go bak 2 my doctor n get refered to the dermatologist to get the Roaccutane if there is no inprovement, which there hasnt bin, am soooo shy bout ma acne, and am always crying bout it, its got to the point ware am not going to skool cse of it, anyway am also putin a cream on called duac which isnt helpin just makin me iche, a just want to no if the Roaccutane dose work, or for just now u can tell me wot face wash or anything u think a can use, plz plz plz help me, a cant wait 2 get the Roaccutane, a just want 2 no if it is helpin u, anyway here from u l8a, and get bak 2 me wen u can, love
claire xxxxxxxxxxxxxxxxxx

September 29th, 2007 at 11:17 am

#27 Will says...

Hi Claire, you can see Abi’s progress here (she is in week 14 now): http://reclaimyourskin.co.uk/category/abis-roaccutane-diary/

Good luck :)

September 29th, 2007 at 11:45 am

#28 Abi says...

Hi Claire,

I also went on dianette before Roaccutane and it didn’t help me much either. It made me very emotional as well.

It’s a pain you have to wait 3 months to see the derm again, but if they give you Roaccutane it will be worth it. My skin has improved enormously and I feel alot better.

I was the same as you. I never ever wanted to go to school, and when I did, I used to walk around with my hair over my face because I felt so self concious. It’s a horrible disease that can really give your self-confidence a battering.

Whilst you are waiting for Roaccutane, you could give tea tree oil a go, I used to find that quite helpful. Also, steer clear of really harsh products as in my opinion they just make things worse.

Let me know how things are going for you,

Abs
xXX

September 29th, 2007 at 3:10 pm

#29 Jordon says...

Hi i came across this site as i googled Roaccutane! I am in the army and have been begging for something to help with my acne for years! I eventually went to a civilian doctors and have sine had a mixture of different tablets, lotions an potions for the past 3/4 years! Acne was never a big problem for me during my teens but whilst serving in Iraq at 19 i got a big break out which i assumed was from the long work hours, stress poor diet but it never went away and continued to get worse! I find my worse area is the top of my jaw line under my ears where i get red sore bumpy spots which never come to ‘a head’. I am working in Cyprus at the minute where i finaly got referred to a dermotologist who has perscribed roaccutane! Thing is i read about the sensitivity to sunlight and i am obviously workin out in the sun all day! I was wanderin if you would think that it would be better to keep hold of my tablets (i have the full percription ) And take them in December when i am out of the sun? Also i have been told i will need a blood test every month does any1 now what this is for? tHANK U xxxx

September 29th, 2007 at 7:16 pm

#30 Amy says...

Hi Abi and everyone:

I am just like most of you guys, I have been having acne for around 7 years, I have cried and tried many products and antibiotics, nothing has helped me. I have totally lost my self-confident, I feel uncomfortable when talking with ppls face to face. I feel I am ugly I feel I wanna cry, seriously spots really let me down. I always ask myself why do you panish me in this way…..

I went to see dermatologist today and bought 10 weeks drugs, its Roaccutane 20mg, I will start to take one capsule each day for 4 weeks and take two capsules each day for 6 weeks, I am now waiting to have my first day of period and start taking them, however I am now very scared of the side effects.

I am very much worried now could you pls kindly advise.

Loads of love

Amy xxx

September 29th, 2007 at 8:52 pm

#31 Will says...

Hi Jordon,

You need monthly blood tests to check your liver function is working correctly.

It might be better to wait till December (if you can wait that long) because your skin will be extremely sensitive to the sun, if not just use plenty of sun cream and you should be fine.

Good luck and let us know how you get on.

Will

September 29th, 2007 at 10:54 pm

#32 claire mckendry says...

hi abi, thank you so much yah made me feel alot better lol, eh av herd of that tee tree oil before, but am not 2 sure ware to get it lol, and av looked it up on the internet and all different types of tee tree oil came up so i wasnt 2 sure wot kind to get, do u have any in mind thank you soo much, lots of luv

claire xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

September 30th, 2007 at 12:03 pm

#33 claire mckendry says...

oo and also forgot to say thanks to will for the site on abi’s progress thank you! xxxxxxxxxxxx

September 30th, 2007 at 12:06 pm

#34 rich says...

hi amy,
youve jus tgot to remember that it will get better. im sure youve heard all sorts of crap about “you’ll grow out of it” (im still not sure what people expect me to take from that), “its not that bad” etc, but it will get better. the acne on my face has improved quite a lot after using retin-a cream for the last 7 months, its still not great but its better, but ive always found it helpful to google image search things like “severe acne” and compare it to yourself, because there are some BAD cases that can really help you realise that maybe its not as bad as you think. remember, if you are conscious of something in your appearance you will focus on it and notice it every time you look in the mirror, people might notice your acne, particularly if it is bad, but its unlikely that they notice it even half as much as you do. either way, it will get better.
hope ive been helpful :) x

September 30th, 2007 at 2:29 pm

#35 Jordon says...

Hi will,
Thank u 4 that! Yeah its guna b real hard waitin till dec but i have patches on my arm from skin pigmentation (which is from goin in the sun wen told not to on another acne tablet!) I was warned that it will happen on my face and that if i suffered this from a weaker drug i wud almost certainly get it worse this time! I have all my tablets in my draw tho an its so hard not to take them now! But i figuered im sure i can wait 2 month to giv myself a better chance of finaly bein free!!!!

AMY
Do u need to start takin Roaccutan on the first day of your period?? Nothng about this was mentioned to me by my Dermatologist, doctor or the pharmacy!

October 1st, 2007 at 1:13 am

#36 L says...

heyy people,i have just started a 4 month course of roaccutane which starts at 20mg and im sure i will be put on 40mg in the future as is stated on the prescription sheet (0.5mg per kg increased to 1mg per kg).Do you think i will be put on a higher dosage than this if my skin isnt responding??Also,i have now been taking roaccutane for a week and so far i havent experienced any side effects although i was fretting them before i started!I would be very grateful if anyone could inform me on when they are supposed to take effect??Also on the 20mg and 40mg,i would like to know if the side effects are strong or mild??Thankyou.

October 2nd, 2007 at 12:16 am

#37 L says...

Heyy Angie,i was put on the duac once daily gel whilst waiting for my referral to see a dermatologist.I must admit that for me it worked fantastically.Previously i was on the Dianette in conjucntion with the retin A as a topical application.Although the Retin A was quite beneficial i didnt see the full effects of it as the Dianette was completely ineffective for me and so my acne continued to erupt.When i was put on the Duac once daily,i noticed the next day that it was drying out the existing acne that i had.Within 2 weeks,my skin was significantly clearer.My whole experience of the NHS has also been positive for those worrying about dermatology waiting times.I got my appointment withing a month due to a cancellation,thank God!But otherwise my waiting time would have been 7 weeks which is still good.Hope that helps.x

October 2nd, 2007 at 12:24 am

#38 Amy says...

Hi Rich:

Thank you very much for getting back to me and also many thanks for all your advice and support, you ve been a gr8 helper :-) I totally agree with you that ppl may see my acne not as bad as I thought so. I think maybe all the presure actually is from myself, however I am just sick of the spots, why they only grow on my face espeically on the check and fronthead where all the obvious places. You know acne really do let you down, ppl who dont have acne who will never understand how it feels like. I sometimes have more and sometimes get less, does stress matter? do you think weather also make acne worse? What do u think about make-up, shall I cover the spots or not? I am really glad I joined in this group, there are so many ppl to share with the same problem. I feel I finally found somewhere I can exress myself.

Take care and thank you again for all your support.

loads of love

Amy xxx

October 2nd, 2007 at 10:18 pm

#39 Amy says...

Hi Jordon:

Hope you are well.

Yeah, my dermatologist told me to take Roaccutan on the first day of my period, i dunno why, do u suggest I should start taking them? I just cannot wait to see the results, I am so sick of acne……..

Take care

Amy xxx

October 2nd, 2007 at 10:23 pm

#40 Ella says...

Hi Amy,
I’ve been wearing make up for years with no adverse effects. I use a foundation that is made of minerals, which doesn’t clog up the pores and feels light on the face. It’s called i.d bare escentuals and you can get it in England or the States or online. (The cheapest option is to buy from America).

Unfortunately it’s quite expensive, but i think it’s worth it because I don’t break out from it and it doesn’t hurt my skin. I’ve been experimenting with make up for years and the cheaper and more junky the make up, the more sore it felt……

A really good cover up is Estee Lauder. I feel it’s worth spending the extra pounds on the more expensive make up for the extra boost in self confidence when your skin is better covered up.
The best way though is to try out different cover ups and foundations and find what your skin doesn’t react to and covers up best. (Try buying samples from ebay)

Good luck experimenting!!!

E xx

October 3rd, 2007 at 5:48 am

#41 Ella says...

Hi Amy
oops!! missed out a bit!!
I started roaccutane last week. I’m 18 years old and have had acne 10 years, several of which it was moderate to severe. At 14/15 the hospital dermatologist told me my only hope was roaccutane and that my skin was never going to be better… I was traumatised as you can imagine. Seeing the list of side effects, I refused the drug and kept in refusing it up until now. i’m scared stiff but I just keep thinking 6 months and maybe it’ll all be over. I’m scared to get my hopes up only to be disappointed yet again (which is what has always happened in the best) but I think this time it really WILL work.
Hang in there! We’re all rooting for you! we’re all going through it together and we ALL definately know how you feel about waking up in the morning and dreading going out! Your not alone!
(I sound like a cheer leader lol ;) )
Anyway have a great day!
E xx

October 3rd, 2007 at 5:57 am

#42 sophie says...

Hey.

17, and have been on many anti-biotics and topical treatments. Being at the dermotoligist today, i was asked to start on roaccutane. But all the side effects have kind of put me off. Not sure wheter to go on it or not. This year ive been on Minox tabelts, Dianette tablets, Tetralysal tablets, Benzame Gel & retin-a. Nothing works!! Dinette was the worst, all it did was give me a constant 3 month breakout. How long was it, untill you saw the roaccutane working?
add on msn?

thanks

October 9th, 2007 at 11:44 am

#43 fiona says...

Hi..

This is a fantastic site and it’s great 2 meet other ppl who are goin through the same thing.. I have been on roacctuane for nearly 8 wks.. on 75mg now.. I am experiencing very dry lips, and sores in my nose.. Also i am still breaking out on my neck which is horrible!!.. I have tried various pills, lotions, and herbal remedies over the years which i see mentioned in other ppls comments… hopefully my skin will clear up .. best of luck 2 all of ye out there 2.. xx

October 24th, 2007 at 8:33 pm

#44 Abi says...

Hey Fiona!

Good luck with your course!

75mg a day is a high dose, no wonder your lips are so dry, mine were almost unbearable on 40mg! Have u found a product to help combat the dryness? I swore by nipple cream lol!

Abs
xXx

October 25th, 2007 at 12:56 pm

#45 Karen says...

Thanks Abi…great tip…I’m now 2 weeks in and my lips are very dry. Have been using the little tins of vaseline and chapstick but I will give the nipple cream a try!!

I did actually notice that reapplying the lip balm seemed to make my lips worse so I try to keep it to applying 3 times a day and that doesn’t make it as bad as when I was constantly reapplying.

xxx

October 25th, 2007 at 1:05 pm

#46 Abi says...

Hey Karen,

Yeah def give the nipple cream a go! It’s not sticky like a lot of lip treatments and its really good for healing the sides of your mouth when they crack without making it sting. The best nipple cream I found was the one made by Avent :-)

October 25th, 2007 at 1:07 pm

#47 Sarah says...

Hi Abi…

Love to read your diary as it tells me what I am likely to expect in my 16 weeks! Start week 3 tomorrow and my dosage is 40mg. So far all I have experienced is very dry lips and a scaley nose and over night about 5 spots errupted some quite hard painful ones. What I wanted to ask you is wether you were able to exfoliate whilst on them I know it advises you not too but its nice to buff those flaky bits away.. lol. Just wanted some advice.

Thanks :)

October 25th, 2007 at 7:02 pm

#48 Abi says...

Hey Sarah!

I decided against exfoliating (even though I was tempted!) because I was told it could cause scarring. I treated my skin exceptionally gently throughout the course just using “simple face wash” and “simple moisturiser”.

The flakes are incredibly annoying i know, especially when you want to apply make up. You could try “eumo base concentrated rehydration cream” on the most flaky areas. Put it on befrore you go to bed and when you wake up the flakes are normally gone :-)

Glad my diary has helped and good luck with your course. Let me know how things go :-)

Abs
xXx

October 26th, 2007 at 1:05 pm

#49 fiona says...

Hi Abi..

Many thanks for getting back 2 me!!! Just checked what mg im on and it was 65mg and not 75mg!!!! Will look into getting that cream for my lips because as well as being very dry in the cold weather that’s just after coming in they are stinging me!!…

thanks for the tip and will update ye after the weekend cause i’ll be working all weekend :(…

fiona
xx

October 26th, 2007 at 2:11 pm

#50 Abi says...

Hey Fiona,

How was your weekend?? How are your lips doing??

Abs
xXx

October 29th, 2007 at 8:02 pm

#51 Amber says...

Hi All,
Olive Oil for lips is fab! It does sound odd, but my dad reccommended it, he’s very into alternative health, so I thought I’d give it a go. I’ve been rubbing it into my lips morning and night for a few days and my lips are not flaky at all! - Although still do get dry during the day, so I ‘m going to get those mini empty containers and carry it round with me. You have all got to try it!

Another one is Rosemary oil (mixed in almond oil) It’s great to help skin heal. But use it sparingly as it can dry the skin. Don’t use it more than once or twice a week. But this also really works for me so I thought I’d share my success.

Amber

October 29th, 2007 at 10:49 pm

#52 Amber says...

Whoops just realised I better explain better. Rosemary oil is NOT for lips. It IS FOR the face ONLY. Just to be clear!
Amber

October 29th, 2007 at 10:53 pm

#53 fiona says...

Hi Abi..

Am working in a factory and was working all weekend.. As you can imagine the air inside a factory is very dry so that didnt help my lips at all!!.. One of the girls gave me some elizabeth arden 8 hr rescue cream for them and omg what a difference!!! Am going in2 town 2moro 2 buy some..It made some difference to them:)… Am still getttin horrible red spots on my neck :(.. They look as if they are on the way out by taking so long 2 go:(…
Hope you are well and tank for gettn back 2 me..

fiona
xxxx

October 29th, 2007 at 11:01 pm

#54 nick says...

hi everyone just found this site . wish i had found it 4 months ago, as today i have just finished a 4 months course of roaccutane
@75mg a day.and i have gone through all the side affects you all have. my back still looks like red bubble wrap but it a little better. a mate has told me that its when you stop taking it you start to get better is this true?because i dont wont to go back on them . nick 48yo male

October 31st, 2007 at 5:58 am

#55 cheryl says...

hi,
Vilantea?
Has anyone else tried Vilantae (available on line from derbyshire)this is a tablet which makes your body remove the excess oil in the way that it should be doing, without side effects. Myself and daughter have found it good after roacccutane and an excellent maintenance product once the main problem has been tackled it helps excess oil in a very effective way, tests have shown it to be the next effective treatment after roaccutane(their statistics) it may be the answer for people who still have a problem but not severe enough to suffer the side effect again. The web site is very informative. I feel the pain of everyone i want all the GPs in the Uk to read this site, does any one have any idea how to bring it to their attention, i am thinking about a mass letter but their may be a web site where they all talk does any one know a doctor and could ask them, i feel they do not understand the level of suffering and how the patient is unable to demand treatment because their self confidence has been torn away and they have this weird guilt feeling- we would all be demanding better treatments if we had a leg falling off etc!! Again all the best to everyone.

November 1st, 2007 at 9:21 am

#56 rebecca mcgrath says...

hey abi, im looking forward to hearing how your skin is now…I have had acne since i was 15 (now 23) i have been on roaccutane and antibiotics for 6 months, although my skin does look slightly clearer i now have big hard red boils on my face, awful cracked lips….and suffering depression, i finish my course in 2 weeks and just dont know what my dermatolagist is going to suggest next! like you i have tried almost everything and am also currently on diannette and using a topical lotion, my spots just wont budge…i wish someone would look into why i have acne, what the cause is…then maybe they could help…its such a devastating thing to have..it rules your life..im fed up with constantly hiding my face, sites like this are great to remind us we are not alone.
good luck and keep us posted!!
becky x x x

November 2nd, 2007 at 6:41 pm

#57 Abi says...

Hello Rebecca,

I’m so sorry you are having a bad time at the moment. I know all about that.
I couldn’t even begin to count the amount of times I’ve sat and cried wishing that I had been blessed with clear skin. I would hate to watch the tv as I felt so jealous of the people on it, who didn’t have to wake up everyday and worry what was going on on their faces.

My second course of Roaccutane has luckily worked very well, you can see my full 16 week diary here:

http://reclaimyourskin.co.uk/category/abis-roaccutane-diary/

Sometimes people only start to see improvements once they have finished their course so there is still a possibilty your skin might improve. Perhaps they will suggest another course? I had to have 2 courses. I may even need a third if I relapse again.

I think its awful that so many of us have to suffer with this disease. People with clear skin don’t understand the anxiety and depression it causes. Please don’t give up hope that your skin will get better.

Let me know how things go for you,

Abi
xXx

November 4th, 2007 at 9:25 pm

#58 Emma says...

Hi there

I went on roaccutane in 2004 and it managed to keep it at bay until now… it appears to be coming back again pretty badly on my chest, i’m hoping this is just a one off due to the change in weather and that it will clear up again, if not and if it gets worse i guess i will have to be refered back to my dermatologist and go through all the antibiotics again before they let me back on the stuff. It’s very unfair that we have to go through this, but at least we never take clear skin for granted when roaccutane does work be it only for a few months or a lifetime.

November 8th, 2007 at 3:20 pm

#59 Em says...

Dianette made you emotional too? when they put me on it it made me completely loopy!

November 8th, 2007 at 3:48 pm

#60 Abi says...

Hey Emma - When my acne came back I managed to bypass the whole antibiotics and useless creams and got the Roaccutane back straight away. I think that might have been because I said I was willing to go private though. They seemed more willing to put me on it a second time as well because my body had responded well to it the first time. Hopefully your chest will clear up soon though and you won’t need it :-)

Hey Em - Yeah Dianette is crazzzy stuff. I’m still taking it now and I find myself crying all the time. I can’t even control it, tears just start running down my face!! I’m allowed off it in about a month when the Roaccutane is completely out of my system and I can’t wait to rid my body of it!

November 8th, 2007 at 7:56 pm

#61 alexa says...

hi every one!!
i started having acne when i turn 16 but it wasn’t bad i tried proactive but i didn’t work, it was nothing to worry about my face wasn’t that bad but after i had my baby i took birthcontrol pills and i guess something happen to my hormones that i started having bad acne i was feeling so ugly , in a bad mood i felt so down so then i atrted takin roaccutane and my skin clear like a miracle for 3 months so i thought i didn’t need to keep taking it b/c i was always scare of the side effects but now after 3 years my skin is getting worst like never before and i tried using a lots of make-up to cover up i have to spend 2 hours trying to cover all my pimples and dark spots. i think i’m not going to have other option i guess i have to get roaccutane again hope it works and tjis time i’ll finish the treatment. good luck to everyone!

November 12th, 2007 at 11:44 pm

#62 Donia says...

Hi Guys

I have read all your emails, and I understand all about the depression acne brings with it.

I have suffered from Acne for 13years and my GP has refused to refer me to a dermatologist. I have been able to purchase the drug over the counter for a very high price as the waiting list is too long. I have been reading all your stories and i am rather confused about the term ‘course’. Is that when the packet is finished? i am currently on my 2nd week and i have not had any sidse effects yet, should i expect some next week?

Please help!

Donia

November 13th, 2007 at 8:47 pm

#63 paul says...

hi donia

course is just the length of treatment it can be 4 months or as little as two

as for the side affects theres no need to expect them as they may never happen, of course the dry skin and lips will, thats just they way that roaccutane works,

but as for the other side affects such as muscle ache or headaches it affects different people in different ways so you may not experience it and if you do it is completely manageable

November 13th, 2007 at 10:12 pm

#64 Ben says...

Hi Abi,

I’ll be going on Roaccutane soon (pending ok liver tests!). I’m 24 and my skin’s been going downhill for the past few years, mainly on my face and back. I’ve tried erythromycin, retin-a, and benzoyl peroxide amongst others with no effect.

Got to say i’m a little worried about side potential effects (particularly hair loss!) but i’m going to give it a go.

Thanks for sharing your story :)
Ben.

November 16th, 2007 at 5:21 pm

#65 Abi says...

Hey Ben,

Try not to worry yourself too much about all the side effects. I have taken two courses of Roaccutane now and I still have a full head of hair :-)

Also, the dry skin and lips are manageable once you find a good moisturiser and lip balm. Hopefully yout liver test will be fine and you will be on your way to clear skin in no time :-)

Let me know how things go!

Abs
xXx

November 16th, 2007 at 6:35 pm

#66 Emma says...

Hi Ben,

I too was worried about the side effects but really the only troublesome things have been really dry lips and a rash on my hands. There have been other minor things - a few headaches, sore gums and feeling a bit achey, but these haven’t really bothered me. I wish I’d pushed for a referral earlier as I’m also 24 and it’s horrible still getting spots at this age. People make judgements about you - that you eat rubbish, don’t look after your skin etc, when the irony is you probably take more care with these things than someone who’s never had spots. I hope your course goes well. Oh, and don’t let thoughts of an initial flare up scare you too much - it does happen but it’s manageable and nowhere near the horrific eruption you imagine it’s going to be! Take care.

November 16th, 2007 at 8:58 pm

#67 Richard says...

Hi abi! Im john richard,i had pimples or acne since i was in elementary grade 4 to be exact… I was about 10 or 11. And now im 16 and still suffering acne. I started taking roaccutane for 6 or 7 months , but i decided to stop even my mom insists to continue it. I was very frustrated that my pimples will lessen but after a couple of weeks it returns and i had super dry lips and nose. Then my school mates even teased me regarding my very dry lips, eventhough im applying the proper lipcare. I have been immune to insults and criticisms of other people especially in school they would call me names like shotgun,pimp,dots and etc. I even came to the point of fighting with them. It really hurts not only physically but emotionally and socially.

November 17th, 2007 at 7:25 pm

#68 Abi says...

Hello Richard,

I completely understand what you are saying. Being in school and having to deal with acne can be so appalling. I got called some horrible names too and everyday I would go home crying to my mum and she felt awful because she didn’t know what to do for me. I also avoided doing loads of things because I hated meeting new people.

I agree with your mum, you should persist with the Roaccutane. I think its awful that people made fun of your dry lips and nose, it makes me furious actually, people are so cruel. They have no idea what you are going through.

Did you find the roaccutane was helping when you were taking it? What mg were you taking a day? Did you decide to stop because of the dryness?

Abi
xxx

November 18th, 2007 at 12:32 pm

#69 Richard says...

THANKS ABI FOR THE REPLY, I FIND ROACCUTANE WAS HELPING ME SOMEHOW DURING THE FIRST 3 MONTHS. I WAS TAKING 20 MG A DAY, WELL ONE OF MY REASON FOR STOPING MY MEDICATION WAS DRYNESS OF MY SKIN AND I ALSO FEAR THAT SOMETHING MIGHT HAPPEN TO MY LIVER

November 18th, 2007 at 12:53 pm

#70 Abi says...

Hello Richard,

20mg a day is a low dose, maybe this time your doctor will raise you to a higher dose as you should then get results quicker :-)

The dryness of your skin can’t really be avoided as that is just how the drug works, try to find some good products that suit your skin and it should help.

About the liver thing, when you were on Roaccutane did your dermatologist give you monthly blood tests? If so, they are there to show that your liver is still functioning correctly.

November 18th, 2007 at 12:59 pm

#71 Amanda says...

This has been a really helpful site. My son, 12, is about to start on Roaccutane - blood test done today so as soon as we get the all clear he will start on the tablets. I am hoping the side effects will be minimal and have not gone into great detail with him on what to expect as thought it would make him very anxious, possibly unneccesarily. I will tell him about this website if he wants to share with others, but he is much younger than most using this site, plus he has mild learning difficulties, so don’t know how supportive it would be. Has anyone else had experience of using Roaccutane at such an early age? I am really hoping it will help him get rid of his acne and with minimal side effects.

Hope you don’t mind having an “oldie” using your blog!!

November 29th, 2007 at 4:05 pm

#72 julie says...

hi just read all your stories and i have tears in my eyes im a lady of 40 who since maybe 10 had loads of spots, i hated my self at skool , i lost all my confidence, in fact i think it affects you big time, i hated them i felt ugly and worthless, i got loads of things from the doctor, which didnt help , i was to start roaccutane but before i started i fell preggers with my first child, amy who is 14 now i went on to have another kid ross who is 8 then i started the treatment 3yrs ago, it worked great i had dry lips and my hair got dry, but i found my bones ached, i only stayed on it for 3mnts and it was wow, i fin the course and wanted to start a family once again , so i waited to the stuff came out my system , i fell pregg right away and had a boy called callum who is 1year old, but i fell im getting a odd spot and i have alot of scarring around my chin and mouth where my spots were bad when younge, i would love to find something for that, i still have a bag of roaccutane since the last time and i no i shouldnt but im going to start them not telling my doctor ,thats how bad im feeling im very depressed with my skin, i no your ment to get your bloods cheacked but im going to just carry on taking them for a couple of months,

December 4th, 2007 at 1:37 pm

#73 salma says...

hi please reply back to this email- i am 20 years old and have just started rouaccutane 20mg at the moment i have experinced no side effects but i think i may go for a higher dose. the acne doesnt really bother me its the scarring that its left all over my face i wont be able to get a treatment for my scarring until 6 months after i finsh my pills. i wanted to know does roaccutane help with red marks left from acne as well as acne? my face is covered withacne and the marks and scars i feel so embarassed to go out wothout any makeup at the moment i am really being bullied by friends and strangers people walk out of restuarants because i put them off their food - so i have decided to hide away from the outside world- has your acne left you with scars or is it just me on my own.
love salma

December 4th, 2007 at 6:56 pm

#74 Abi says...

Hello Salma,

I’m so sorry to hear how your acne is affecting your life. It really can be so damaging to your confidence, but trust me, you are taking medication that should help alot.

I had bad skin for years before I took Roaccutane and I know how it feels to have people bully you. If your friends are teasing you about it, then they do not sound like the sort of people you should bother with. You need to surround yourself with people who support you.

My acne is now gone but I still have some red scarring - my dermatologist assures me it will fade though, it just takes time. At the moment I just use a good quality foundation and concealer which seems to cover the red marks quite effectively.

Hopefully the Roaccutane will successfully treat your acne and then given time the scars will fade. Please do not hide yourself away, you should never feel ashamed about having bad skin, it is not your fault.

You can write to me on here at any time throughout your treatment :-)

Good luck with everything, hopefully things will start to get alot better for you in the near future,

Love Abi
xxx

December 4th, 2007 at 8:15 pm

#75 julie says...

hi salma i understand were you coming from, but roaccutane is the best thing out there i think, i no when u read the side effects kind of puts you off, i really only had dry lips and my hair broke a bit, i suffer from arthrits so my joints bad anyway, but i felt my bones ached bad, but they way i kept thinking was this should be worth it, i felt this first month my skin got worse, but they said that could happen, do you feel yours has? my bf nos i still feel down although my skin100% better than it was i feel i have a lot of scaring as when i was younger the doc used to slit my face when i got bad boils??? so i have scars which i think look alot worse now,i no how you feel thou i was very down as a child and my daughter is 14 and i see her with few spots and i pray to god she not got my skin coz i dont want her to go throu what i did, it can knock you do so much. if you got anything to ask or want to no about it you can email juliejack8@aol.com and as the other person said they cant be your friends if there calling you names, i keep my fingers crossed that you get on well with it

December 4th, 2007 at 9:03 pm

#76 salma says...

thanks julie and abi

its only been five days since i have started rouaccutane 20mg my lips are abit dry but i havent broken out and my greasy hair has turned really dry.
it feels reassuring to know that there is someone out there who understands me. i know that red marks left from acne take time to fade but my red marks have been on my face for over five years and they are not fading. i was wondering would rouaccutane help with the red marks on my face? i do cover my acne marks with make up but when i take all the make up off its very depressing and the indented scars i have got on my face i know can never be covered with any amount of make up. i stumbled on this website by mistake but now i feel so glad to have found people who are experiencing the same problems that i am. i’ve also broken up with my boyfriend because he wants to get married and to tell you the truth i can never see myself as a bride just feel so ugly.
love salma

December 5th, 2007 at 10:52 pm

#77 Abi says...

Salma - please don’t end your relationship with your boyfriend due to your skin. If he wants to marry you then he clearly doesn’t care about your skin, and you need him by you to support you. It’s easy to push people away when you feel bad about yourself but it doesn’t help in the long run. After a few weeks on the Roaccutane when you start to see improvements I think you will feel so much better :-) It does take a little time to kick in though, you have to be patient.

There are specific treatments used to treat scarring such as dermabrasion and chemical peels, however you will have to wait until your Roaccutane course is over before you can start considering those. I have not tried either myself so I cannot say how well they work, I would suggest asking your dermatologist about them.

Love Abs
xxx

December 6th, 2007 at 12:39 am

#78 Helen says...

Hey Salma. I think most of us here know how you feel, We all get low as acne does affect your confidence massively. However, unless you have any other valid reasons for ending things with your boyfriend then I would do everything in your power to get him back - I know it’s a cliche but good blokes are hard to find and trust me - if it wasn’t for my other half Steve (who I’ve been with for 6 and a half years) then I would probably be on anti-depressants right now. He’s been an absolute rock to me and as Abi says above - if he wants to marry you then the guy is a keeper! The red marks will fade in time. As Abi says I wouldn’t look into any sort of dermabrasion until the Roaccutane is well out of your system but there is one sort called “Crystal Clear” which I hear works wonders. It’s a technique where tiny grains are blown onto your skin to sort of “sand it down”. I know several people who have had it and they all rave about how good it is. It’s worth bearing in mind anyway. Hang in there Salma. xxx

December 6th, 2007 at 12:02 pm

#79 julie says...

hi helen could you tell me more about that crystal clear ive had my treament fin now and im waiting on going to the hospital for my scars they get me down like salma, but hey salma i no were you are coming from im geting married in aug and i feel my scars are a problem, but helen right your bf loves you for who u are, i had a set back on tuesday night i was in tears over my skin and scaring and was telling me bf i want lovely sking for my wedding in case the pics are close up and he says i think your great the way you are and i told him ppl dont understand till there in that postion it gets me down that much sometimes i shut myself away from the outside work, but hang in there xxxxx

December 6th, 2007 at 3:34 pm

#80 Helen says...

Juile - there’s a few links here on the Cyrstal Clear Dermabrasion. What you want to do is get in touch with some reputable beauty salons in your area and have a chat with them. Prices probably vary a little bit.

http://www.crystalclear.co.uk/treatments/Microdermabrasion/overview

http://www.skinandtonic.biz/face.htm

http://www.top2toe.net/prod021.htm

As for wedding pictures… My cousin - who also had a course of Roaccutane a couple of years back - got married two years ago and a few weeks before the wedding she had a break-out, mainly due to the stress of it all. God, she was in hysterics. But, the photographer was fabulous, he did a lot of the close ups in soft focus and she looked BEAUTIFUL in the pictures. In case you are worried just have a little chat with the photographer (if you’re having one) and I’m sure he/she will be happy to help. At the end of the day you’re getting married to the man you love and it’s gonna be a fantastic day. Any more queries just ask me, am always happy to help! Love, H. xxx

December 6th, 2007 at 3:55 pm

#81 salma says...

thanks helen, abi and julie

i will wait until my rouaccutane treatment finishes before i start a treatment for my scarring. i have done quite aboit of research into treatments for acne scarring but the problem i am having is that treatments such as dermabrasion are not really suitable for people with an asian skin tone and to tell you both the truth i cant find any treatment that is. there are many treatments available for people with fairer skin tones which is quite disappointing for me. do you both know of any saccring treatments for asian skin?
also is it normal for my red marks to be on my face for over 5 years?
finally, can you recommend me a good foundation and concealor that is long lasting, doesnt look like im wearing a mask and oil free? i have tried everything and nothing seems to last on my greasy skin my face ends up shiny and the foundation clour changing.

thank you oth for replying
love salma

December 6th, 2007 at 4:11 pm

#82 salma says...

hi julie

firstly, i know how you are feeling and i feel down because i really havent seen anyone up to this day with as much acne scars as me. to tell you the truth i dont think your acne scars will be worser then mine trust me. if your skin tone is light there are many treatments out there for you demabrasion is a good treatment if you go private it costs roughly three thousand pounds although this can vary depending on the amount of scarring a person has and you may need more than one treatment. i think you should go private because the waiting list under the nhs are quite long and you can only get an acne scarring treatment after you have stopped taking rouaccutane for atleast six months. email me for acne scarring advice and treatments i ahve got numbers and contact details that i can give you if you want to go private- my email address khansalma33@yahoo.com. my problem is that although i have alot of information on acne scarring treatments i cant find one that is suitable for asain skin tones like myself. so if you know of anyone please let me know. if your boyfriend has accepted you for who you are definetly marry him after all it takes a very special person who can accept you for whoever you are. with my boyfriend i love him but thats why i have left him i dont want people to poke fun of him because of me thats something i cant live with. people have done that in the past and when he introduces me to his friends they all act really shocked which is really embarassing because they make it so obvious infront of me.

love salma

December 6th, 2007 at 4:26 pm

#83 NG says...

Hi Salma,

I know it is difficult to be remotely positive at the moment as you are feeling so down, but you can’t let it ruin your entire life.

It sounds like you have had these scars for some time and I think you have to remember that your boyfriend chose to be with you regardless of the scars. I know it sounds incredibly corney, but what really matters is what’s on the inside of a person not the outside. I know these words are really hard to believe when you don’t feel good about your skin and believe me most of the people here feel/or have felt like that, but remember your boyfriend seems one of the good guys and you need as many of those people on your side as you can. I don’t think he would of introduced you to his friends if he felt embarrassed to be with you. I think sometimes when you are really conscious about something, you think that everyone is looking at you in a strange way. Remember, nobody’s perfect!!!!!

Have you asked your derm about your options? I know you said you have asian skin, but there must be something out there that can help. I recently read that the singer Seal had some work done on his tribal scar on his cheeks so there must be something available for darker skin. Ask next time you go to see your derm.

Try to remain positive. You will get there in the end.

NG

December 6th, 2007 at 5:00 pm

#84 Helen says...

Hiya Salma, if I were you I’d ring round a few beauty salons. It’s a good idea to ring quite a posh place like the salon in Harvey Nichols or even the beauty department in a store like Selfridges and ask their advice, that’s what I’d do. SOMEONE has to know! Good luck and let us know how you get on. Love Helen. xxx

December 6th, 2007 at 9:24 pm

#85 julie says...

donia how did you get the drug over the counter? as i have some left and i am tempted to take them again but donia didnt they tell you that you need blood test all the time? so who wiil do your bloods?

December 6th, 2007 at 10:27 pm

#86 salma says...

hi

i’ve been on the rouaccutane pill for roughly 12 days 20mg my skin is abit dry but apart from that i’m okay. does that mean that teh pill is not working on me?

December 16th, 2007 at 7:39 pm

#87 Abi says...

Hello Salma,

The first signs of any dryness means your skin is starting to react to the Roaccutane so don’t fret! :-) You have only been on it 12 days so far, and sometimes it can take up to 2 months to start seeing improvements, so don’t worry that it isn’t working just because nothing much is happening yet. Also, 20mg is quite a low dose so you aren’t likely to experience any really severe dryness.

Be patient and hopefully soon you will start to see your skin getting better :-)

Abs
xxx

December 16th, 2007 at 7:52 pm

#88 Donia says...

Hello everyone,

I have now been on roaccutane for 2months, but i am seeing no improvement. In fact my face went crystal clear within the 1st two weeks but i am finding that the condition has worsened. I now wake up with at least 2 new dimples, they look and feel very sore.

Is this common, it is depressing me greatly and i dont really know if this is normal.

Please help.

Donia x

December 17th, 2007 at 5:58 pm

#89 salma says...

hi donia

i was also told that rouaccutane can cause more acne but you have to continue with the tablets.
you probably have got spots now because you probably started on a low dose and then you probably movd to a higher dose. the higher the dose the more likely you will get more acne to begin with but with time it will calm down. dont worri it is normal trust me.

December 22nd, 2007 at 6:17 pm

#90 Rose says...

Hi Donia,

Ive been on roacuttane for about 6 weeks now and my skin has been absolutly awful for all of that time, however in the last few days i have seen so much improvement! you just have to try and be patient-although its really difficult at times! within the first couple of days of taking the tablets i started getting more spots that were angrier and lumpier than i have ever had! it was so bad and quite an awful time for me as i was really self conscious of them! but i tried to take it as a sign that its the tablets working from the inside and feel so much better now! i know ive still got some way to go as i am still getting a fair few spots but youve got to consider the long term. I understand that it must be hard when it started to improve and then appeared to get worse, but stick with it, it will be worth it in the end!

Good luck with the rest of your course x

December 22nd, 2007 at 7:39 pm

#91 Lisa says...

Hey everyone
Was very interested to read about peoples views on accutane.
Having just came off a course of accutane i just wanted to say that i cannot be more greatful that i have had the drug.
When i started taking it i broke out in even worse spots lasting a good few months and was pretty depressed but i stuck at it and it slowly improved!!
Acne made me very shy, lack confidence and feel ugly. I would avoid going out at its worst and avoid eye contact with other people.
I have suffered from acne since i was 12 and now 17 and acne free i could not be happier.. and its all thanks to accutane.
Good luck 2 every1 :]

December 22nd, 2007 at 11:54 pm

#92 Abi says...

Hey Lisa,

Really glad it worked for you :-) It’s completely cleared up my skin too, I’m still so shocked when I run my hands over my face to feel smooth skin. I’m finally able to talk to people without being worried that they are staring at my skin. It’s also nice to not have to pile my make-up on with a trowel anymore!

xxxxx

December 23rd, 2007 at 1:31 pm

#93 Samy says...

Hey everybody,

I’m 25, I had Rouaccutane when I was 18, and now the spots are back, I will see a Dermathologist next week, and I’m sure I will take again Rouaccutane, Can anyone tell me how much cost the drug, and where I can find It?

Many Thanks, and good luck to everyone

January 1st, 2008 at 2:22 pm

#94 Aaliyah says...

i started getin acne wen i was 16 i tried minocycline antibiotics n they didnt help so i went on the pill dianette 4 a year and this didnt help either.. after this my doctor refered me 2 a dermatolgst.. i went on roaccutane for 4months my skin cleared up totally.. my skin was clear 4 about 5 months n then recently ive started getin acne the same as b4..in the same places n everything..! ive spoke to my doctor n shes told me 2 go back on roacc but i duno if i shud cz they side effects wer bad.. it made my hair fall out n it still is..i mean i dont wana go bold n then my acne duznt clear up either.lol sum1 help meee im 19 yrs old.. and thers dys wen i cant go uni coz im so embarassed…

January 1st, 2008 at 4:17 pm

#95 Jo says...

Hi Samy,
If your Dermotologist prescribes you Roaccutane, you will be able to get it from your GP or the pharmacy at your hospital. As it’s on prescription, it will be about £6.50 per prescription.

All the best,

Jo

January 2nd, 2008 at 11:12 am

#96 Claire says...

Hi Samy - roaccutane can only be prescribed by a derm and not a GP. I went private through my company BUPA scheme and paid 180 quid for 8 weeks supply. When i go back for my check up, i presume it will be around another 180 for the next 8 weeks worth…so it is pricey if you go private, but its def worth it! Good luck!

January 2nd, 2008 at 12:57 pm

#97 Samy says...

Thanks for your answers, I’m actually going private, as my GP don’t want me to see a dermatologist and don’t want me to take Rouaccutane, I’m going to The London Dermatology Centre, the visit will cost 180, I just hope that if I will have a private prescription, I still can get Rouaccutane for 6.50?????
I will keep you updated, bye

January 2nd, 2008 at 3:47 pm

#98 Abi says...

Hiya Samy,

The first time I had Roaccutane I got it on the NHS and it was £6.50 a time. However, I did have to wait a while before I got the tablets. The second time I took Roaccutane I didn’t want to wait so I paid to go private. My appointments with the dermatologist cost me £60 and my prescriptions cost me about £30 a month. The dermatologist actually estimated that the Roaccutane would be about £90 a month but for some reason it was cheaper.

xxx

January 2nd, 2008 at 4:46 pm

#99 vicky says...

Hello Everyone,

I have just been reading all your posts and it is really getting me though this :( Im on week 4 of my course and am taking 20mg. I am really worried as absolutely nothing good has happened and im really not feeling positive about ro-accutane at all! The only thing thats happened is my skin as been worse than normal since day 1 of my treatment :( Its different than normal as my cheeks are all covered in white heads which i find impossible not to squeeze. Does anyone know how to help white heads? Also ive been getting these HUGE boil type things which have no head and feel like mountains.

Does anyone have any tips and is this normal not to have experienced anything good by a month?! Im really feeling down today. HELP!!

Happy New Year though everyone xxxx

January 3rd, 2008 at 12:52 pm

#100 mark says...

Hi guys,

Just wanted to know how long after treatment i could start to use the sauna at my gym, am on the 5/6 month of treatment on 70mg with about 3 weeks left and have suffered with a red /sunburn/olively brown/pale kinda face for a while now so am bit worried about useing the sauna/steam room
Any sugg/experinces?

Cheers guys

January 9th, 2008 at 4:52 pm

#101 Samy says...

Hi Abi,
Thanks for your reply, I have been to a private as well (180) and I got Isotretinoin for 30 as well.
I hope that this time will be the last one..

January 10th, 2008 at 7:52 pm

#102 Eva says...

hello everyone, I started getting severe acne at the age of twelve and still suffer badly from it at the age of 25, despite what many non sufferers think there is certainly no easy cure yet I constantly get nasty looks because they think its as simple as going to the doctor and a miracle cure will get rid of them in no time, but the reality is that many products simply don’t work (for me anyway) i’ve tried loads of products/treatments those prescribed by my doctor and also ones you simply buy in a chemist and none of them worked. As a result I have no self esteem, no job and detest having to even go out the front door. My doctor only recently referred me to a dermatologist but due to my depression it was agreed that Roaccutane(or accutane as its known in America) was not a good idea, i probably would jump off a cliff or something plus I already suffer from Tinnitus and very dry lips and the medication was likely to aggrevate them even more, surely there must be something out there that isn’t so strong that instead of tring to remove the symptom actually deals with the cause of acne instead, looking at the ingredient list of Roaccutane, in the leaflets I’d been given, I was deeply concerned especially that this drug is given to already vunerable people as young as thriteen years of age, i’m persisting on my journey for natural treatments to take, one is called Vilantae but not sure if it really does work as its quite expensive, but there you go, anyway good luck, I hope you are more fortunate than i’ve been!

January 15th, 2008 at 3:21 pm

#103 Zo says...

Reading your stories has made me feel very much like I am not on my own.. I had my first course (and a half) of Roaccutane at 17 - did wonders for yrs but unfortunately things got worse with time. Now at the age of 25 I am 10wks into my 2nd course.. dry lips/skin/hair agreed, but to date no improvement of the spots. Feeling a little low, but hopeful. People dont realise how much acne affects your life. I met a rly nice guy a while ago and am very scared to let him get too close, imagine if he saw me without a full face of makeup on!! I know that sounds tremendously shallow but its true. I guess in some ways us girls are lucky we have makeup as a bit of a camoflague (although sometimes I wonder if that causes a bit of the problem?!) I have used oil-free non-comodegenic (whatever it is) products&Dermalogica for years, also paid £200 for accupuncture with NO improvement. I hope you all have lovely beautiful skin soon - its such a shame when something thats there to protect your body turns against you and makes you feel so sad. X X X

January 25th, 2008 at 7:42 pm

#104 Eva says...

Unfortunately I can’t wear make-up, especially foundation as it makes my skin far worse so my acne is completely exposed and easily seen, I’ve tried Witch Hazel cover stick in the past but though it covers the redness you can still see the lumps/spots. The trouble is with Roaccutane is that it seems so cruel for it to intially give you clear skin only for the spots to return when you come off the drug, in many cases even worse and as the drug is so strong you can’t keep taking it forever, it seems that it can only temporarily challenge your hormones etc that cause spots but they return later, maybe days or months later but still it seems unfortunate to get ones hopes up only for them to return just as your confidence is returning. If only there was something natural you can take on a regular basis that will work without potentially being harmful to the body after prolonged use.

January 26th, 2008 at 10:17 am

#105 Tricky says...

Hi All,

Just to give you a very brief account of my experiences with this stuff.

I took it long before anyone had suggested that it may cause depression. It’s bound to affect people in different ways.

Depression, and flakes of skin as if I had been sunburned and peeling being a constant irritaion, but luckily the guys at work were pretty good, and I am one to give and take a joke so the peeling was fine.

The depression however, was another thing, days and days in my room curtains closed, to the point my parents were so worried they wanted to take me to a therapist but I refused. This really shook me up, and something in my head clicked, as I never realised myself i was that bad, and I managed to snap myself out of it, it just so happened this was at the end of my course, go figure!!

One thing that I can recommend for moisturising, believe me I have tried everything is Boots own make Skin Therpary, it may not work for you but it’s the only cream, over Dove and Simple, that doesn’t irritate my skin.

My skin, incidently cleared up after using Rocacctane but I couldn’t tell you on the dose. With me it has left me with permanently dry skin if I don’t moisterise, if I wash, even just with water, my skin becomes flaky and I have to apply cream stright after I get out the shower as my face tightens up and starts flaking, 20 years on!! (however I am always called BabyFace, so maybe it was a blessing in disguise!)

Try the Boots stuff, cheap and great, and just be aware of Rocacctanes side effects, short and long term.

Even if I had known the side effects I would have still taken it, but I would have been a lot more prepared, hopefully this will help you guys too!

Cheers

February 1st, 2008 at 12:00 pm

#106 hanna says...

hey
i started to get acne when i was about 12, im now 15, i havent had it for that long, but it still drives me mad. i decided to go to thwe doctor after having acne for about 1 year and she has given me numerous antibiotics, the first one started to work but then just stopped, right in the middle of my course, she then put me on cerazette, (contraceptive pill) but that hasnt helped. i went back to see her the other day and she has reffered me to the dermatologist and she said that i would most likely be put on roaccutane. i have fairly clear skin on one side of my face and on the other really blistery stubborn spots that have been there almost since i first got spots.

ive read everyone of these comments and im not sure whether or not to go on this drug because the side effcts dont sound too great plus my doctor said id need to have blood tests every two weeks , which isnt particularily good for me (i am petrified of needles)

i would aslo be right in the middle of my gcse exams while on the course if it was to be prescribed to me…

i really have no idea what i should do and noing all of you have gone through the same thing im just hoping someone cn tell me whether it really is worth it.. or if i should wait til after my exams finish

thanks and i hpe everyones skin gets better :)

February 3rd, 2008 at 8:50 pm

#107 salma says...

hi
this is my second time sending this email i’m still having a hardtime finding a good foundation which gives me good coverage, hides the red marks i have left from acne and is long lasting.
i have tried everything alot of expensie foundations but nothing seems to last any advice anybody?

February 5th, 2008 at 8:14 pm

#108 JoJo says...

Salma,

Through the years, I have honestly tried every make-up brand, cheap and expensive, exclusive (from abroad) or common brands. I think i’ve settled on a good combo that seems to work ok on my skin type. Although, don’t feel as if you have to rush out purely on my recommendation as your skin type may be different??

I’m starting my second week of roaccutane and my skin is still fairly oily. Few dry patches on forehead.

Foundation I use is a combination of Maxfactor colour adapt and clinique superfit make-up (oil free and long lasting). For concealer, I swear by The Body Shop Concealer pencil. Gives me good coverage anyways.

Hope this helps

February 5th, 2008 at 10:23 pm

#109 charly says...

hi there, ive been o roaccutane for two months now but am still getting spots, is this normal? shouldn’t my skin have cleared up by now? I’ve only got a following two months on it…??

February 6th, 2008 at 12:55 pm

#110 Abi says...

Don’t worry yet Charly! I was getting a few spots even in the very late stages of my course. My skin has actually been at its best since I came off the Roaccutane :-)

February 6th, 2008 at 6:04 pm

#111 lauren says...

hello ive been suffering for 9 months and finally after going private im starting a cource of roaccutane im wishign its going to work as its beggineing to take its toll im feelin exremly cut off and unable to go to skool i miss my life and friends some of these stories give me a real confort to no its not just me i hate it when people say it dosent matter and noone cares because it does !

February 21st, 2008 at 9:46 am

#112 lyns says...

I have just read ur diary Abi and it has been so inspiring, ur skin looks amazing.
Just wanted to query the Nov entry about having to wait till roac is out of ur sytem b4 coming off dianette? i am on it 2 and really want 2 come off it but tried many times b4 and get massive flare up. Fingers crossed the roac will stop that happening.
Keep us all posted on ur post treatment skin and thanks again for giving so many of us hope.

xx

February 23rd, 2008 at 9:07 pm

#113 Abi says...

Hello Lyns,

Thanks for your lovely comments :-)

I personally really hate being on dianette. It makes me really really emotional and weird and I literally couldn’t wait to stop taking it! However, I have tried other pills and they made my skin worse, microgynon gave me the worst break out ever.

I think that once you have taken the Roaccutane it will have done its magic and you will find you no longer need the dianette. I was worried I would break out when I came off it but it has been over 2 months and I’ve only had a couple of spots so hopefully it will be the same for you :-)

Abi
xxxxxxxxx

February 23rd, 2008 at 9:34 pm

#114 lyns says...

Hi Abi,

Thank you so much for getting back to me.

So many times docs have taken me off dianette to see if ive ‘grown out of my acne’ - im 28!! Worst ever was so called wonder pill Yasmin. Made my skin horrendous within a wk and took 8 months for dianette to get under control after begging to go back on it.

Really hope roac has done its stuff and can come off dianette cos i turn into a witch for a wk of every month!!

xxxx

February 26th, 2008 at 12:10 pm